Recherche participative

Development of Patient Partnership in the PACA Region
Objectifs  : 

This project revolves around two main objectives: 

  • Characterize the regional landscape and analyze the underlying processes of the ARS initiative (mapping existing patient partnership initiatives across university hospitals, comprehensive cancer centers, and primary care settings; analyzing implementation pathways, barriers, facilitators, and service-user engagement; co-designing operational tools).

(Re)thinking Information and Consent in Pediatric Oncology with a participatory approach
Objectifs  : 

    •   To update and analyze, from a transdisciplinary perspective, the issues surrounding information and consent procedures related to the use of data and biological samples—whether or not they involve genomics—in pediatric oncology, in order to clarify the information processes that precede consent in research and clinical care.

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