@article{bougas:inserm-05471341, TITLE = {{Employment and work ability in individuals living with rare diseases: a systematic literature review}}, AUTHOR = {Bougas, Nicolas and Kangas, Terhi and Vanthomme, Katrien and Solves, Jose Joaqu{\'i}n Mira and Brul{\'e}, Ga{\"e}l and Mellerio, Helene and Vandenheede, Hadewijch and Dumas, Agnes}, URL = {https://inserm.hal.science/inserm-05471341}, JOURNAL = {{Orphanet Journal of Rare Diseases}}, PUBLISHER = {{BioMed Central}}, VOLUME = {20}, NUMBER = {1}, PAGES = {193}, YEAR = {2025}, MONTH = Apr, DOI = {10.1186/s13023-025-03691-7}, KEYWORDS = {Absenteeism ; Employment ; Presenteeism ; Quality of life ; Rare diseases ; Work}, PDF = {https://inserm.hal.science/inserm-05471341v1/file/s13023-025-03691-7.pdf}, HAL_ID = {inserm-05471341}, HAL_VERSION = {v1}, }