@unpublished{brule:inserm-05471302,
  TITLE = {{Evaluating Health-related Quality of Life (HRQoL) Scales for Rare Diseases from a Quality of Life (QoL) Perspective}},
  AUTHOR = {Brul{\'e}, Ga{\"e}l and Caiata Zufferey, Maria and Dumas, Agn{\`e}s},
  URL = {https://inserm.hal.science/inserm-05471302},
  NOTE = {working paper or preprint},
  YEAR = {2026},
  MONTH = Jan,
  DOI = {10.5281/zenodo.17432301},
  KEYWORDS = {Rare Diseases ; QOL ; well-being ; scales ; Evaluation},
  PDF = {https://inserm.hal.science/inserm-05471302v1/file/20251228182252-brule-et-al-hrqol-qol-rare-diseases-2024.pdf},
  HAL_ID = {inserm-05471302},
  HAL_VERSION = {v1},
}