@article{guilabert:hal-05741604, TITLE = {{Challenges in the care of rare vascular liver diseases: Insights from patients, health care providers, and patient organizations}}, AUTHOR = {Guilabert, Mercedes and Dumas, Agnes and Gil-Hern{\'a}ndez, Eva and Sifer-Rivi{\`e}re, Lynda and Sattoe, Jane and Bernegger, Guenda and Caiata Zufferey, Maria and Purificaci{\'o}n, Mar{\'i}a and Danesi, Giada and Hernandez-Gea, Virginia and Darwish Murad, Sarwa and Rautou, Pierre-Emmanuel and Elkrief, Laure and Terziroli Beretta-Piccoli, Benedetta and de Gottardi, Andrea and Berzigotti, Annalisa and Plessier, Aurelie and Joaqu{\'i}n Mira, Jos{\'e}}, URL = {https://hal.science/hal-05741604}, JOURNAL = {{Hepatology Communications}}, PUBLISHER = {{John Wiley \& Sons Inc}}, VOLUME = {10}, NUMBER = {9}, YEAR = {2026}, MONTH = Sep, DOI = {10.1097/hc9.0000000000000998}, HAL_ID = {hal-05741604}, HAL_VERSION = {v1}, }